Cerys’ Journey

I wanted to share with you my journey, with the hope that in sharing my story, it might shed some light on what living with Edwards Syndrome might entail on a day in day out basis.  It was a whirlwind 4 months of incredible highs and incredible lows, but hopefully my story will help you to better understand what journey you may be facing yourself, what challenges you might encounter, the support that you should access, what questions you might need to ask etc.

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